6 Year Old Boy Writes A Book That Raises $92,000 for A Rare Disease

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Dylan Siegel may only be six years old, but he is has accomplished something few ever will. Dylan has written a book that has helped raise money for his best friend, Jonah Pournazarian, who has a rare liver disease. 

The children’s book, called “Chocolate Bar,” is 16 pages long. It was self-published by Dylan’s parents. He and Jonah recently led a high-profile book-signing at a Barnes & Noble. Their website and Facebook page has exploded with support, and they’ve received hundreds of messages from all over the world.

The irony is that Jonah isn’t allowed to eat chocolate. Or fruit. Or any number of flavorful foods. The rare liver disease he suffers from is called glycogen storage disease type 1B. Any form of glycogen storage disease is extremely rare; the kind Jonah has affects one in a million people according to his dad, Rabin Pournazarian.

“It’s a difficult life,” said Pournazarian, 42, an attorney who lives in Los Angeles.

Researchers have already found a cure for glycogen storage disease in dogs yet finding the cure in humans is taking a bit longer because the research is funded almost entirely by philanthropy.

To date, Dylan’s “Chocolate Bar” sensation has raised more than $92,000 to support a University of Florida research team that is working to cure Jonah’s disease. But as impressive as that is, Dylan isn’t content to stop there.

“My goal is to raise a million dollars!” he told TODAY.com. “Then I think I’ll make a whole series of ‘Chocolate Bar’ books so I can raise money for different diseases.”